The As Yet Untitled Huntington’s Film is an independently organized project aimed at raising awareness for Huntington’s Disease. I am Danton, the creator of the project and a member of the Huntington’s community.
Huntington’s Disease is a devastating hereditary disorder with symptoms ranging from involuntary movements to psychiatric issues and dementia. It affects most afflicted people between 35 and 45 years old and the individual slowly deteriorates over approximately the next 15-20 years. It is notorious for tearing through families in particular as there is a 50/50 chance of a carrier passing on the gene to each of their children.
Currently there is no cure for HD, but there are several helpful medications out there. I am not one of the tremendous individuals with the skills and knowledge working to find a cure, so the way I can help is by trying to raise awareness and funds for Huntington’s Research.
This is where the film project comes in. I love all the documentaries and awareness events trying to encourage HD research but as a perhaps overly ambitious individual, I still think something more can be done. Documentaries are wonderful, but they tend to be insular, remaining in the community they are trying to help and seldom reaching outside of it. This project is called a film because that it exactly what it is meant to be. A feature length film with Huntington’s Disease as the focus.
While an episode of House about HD or a quick mention on Breaking Bad is beneficial to the HD community, I believe even greater impact could be made with an entire HD-centric film. And here is another interesting note: I still think showing documentary footage of real families affected by HD is extremely important, especially to show to anyone unfamiliar with the disease. For that reason, the script and the story line has been written to include documentary portions and interviews as part of the film which will be seamlessly integrated during the editing phase. And then we will take our completed film to as many film festivals as possible.
So, we hope you enjoy the site and more importantly the film project. And my team and I promise to represent Huntington’s Disease as professionally and accurately as possible. If at any point you think that is not being done, contact us and let us know what we can do better. Thank you for your never-ending support!
